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Patient and carer experiences of lung cancer referral pathway in a regional health service: a qualitative study

Resource type
Authors/contributors
Title
Patient and carer experiences of lung cancer referral pathway in a regional health service: a qualitative study
Abstract
Abstract Background Lung cancer referral pathways aim to reduce delays and improve referral patterns of people with suspected lung cancer. Aim As part of implementing a lung cancer referral pathway at a regional Australian hospital, this study aimed to explore the experiences and perceptions of people with lung cancer and their carers. Methods In‐depth interviews were used to elicit data for thematic analysis in this cross‐sectional descriptive qualitative study. Patients with newly diagnosed lung cancer and their carers at a regional academic cancer centre were invited to participate in interviews. Five interviews were conducted face‐to‐face, and 14 interviews were conducted by telephone (as per interviewee preference). Interviews were audiorecorded, transcribed and qualitatively analysed. Descriptive phrases were used to generate initial inductive codes and themes. Results Nineteen participants approached agreed to take part in the study. Factors that positively impacted the care experience were good communication, timeliness and patient advocacy and support. Improper communication, long waiting times for investigations and appointments, uncertainty about the process and inconsistent advice from providers negatively impacted the care experience. Participants preferred face‐to‐face or video‐linked consultations over telephone consultations. Conclusions Understanding the experiences of rural and regional patients and carers with the lung cancer referral pathway is important to improve quality of care. Implementing changes to the referral pathway to improve patient and carer experiences needs to be an ongoing quality improvement exercise.
Publication
Internal Medicine Journal
Date
11/2023
Volume
53
Issue
11
Pages
2016-2027
Journal Abbr
Internal Medicine Journal
Accessed
7/6/25, 10:43 PM
ISSN
1444-0903, 1445-5994
Short Title
Patient and carer experiences of lung cancer referral pathway in a regional health service
Language
en
Library Catalog
DOI.org (Crossref)
Notes

Study topic:

Patient and carer experiences of the lung cancer referral pathway in a regional Australian health service.

Study type:

Qualitative study (semi-structured interviews and thematic analysis).

Key findings:

  • Patients and carers reported that good communication, timely care, and advocacy improved their experience of the lung cancer referral pathway.
  • Poor communication, delays in diagnosis and treatment, and inconsistent advice caused distress and reduced satisfaction.
  • Participants preferred face-to-face or video-linked consultations over telephone consultations.
  • The Townsville Lung Cancer Referral Pathway was implemented via the regional HealthPathways portal to support timely and appropriate GP referrals.
  • HealthPathways provided locally tailored guidance to GPs, contributing to improved referral patterns and care coordination.
Citation
Otty, Z., Brown, A., Larkins, S., Evans, R., & Sabesan, S. (2023). Patient and carer experiences of lung cancer referral pathway in a regional health service: a qualitative study. Internal Medicine Journal, 53(11), 2016–2027. https://doi.org/10.1111/imj.16022