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“Dealing with the Hospital has Become too Difficult for Us to Do Alone” – Developing an Integrated Care Program for Children with Medical Complexity (CMC)

Resource type
Authors/contributors
Title
“Dealing with the Hospital has Become too Difficult for Us to Do Alone” – Developing an Integrated Care Program for Children with Medical Complexity (CMC)
Abstract
Introduction: Children with medical complexity (CMC) require highly specialised care, often from multiple providers and over many years. This paper describes the first 18 months of development of the Kids Guided Personalised Services (GPS) Integrated Care Program (the Program). This Program aims to improve health care experience; communication and to streamline provision of care. Discussion: Key enablers across the Program were put in place and 5 individual project streams were used to implement change. An extensive formative evaluation process was undertaken to truly understand all perspectives in developing the Program. Conclusion/Key Lessons: This Program supports families who are caring for CMC by developing shared care models that bring together local health services with the tertiary hospitals. The methodology used has resulted in comprehensive system change and transformation; reduced presentations to the Emergency Department (ED), avoidable admissions and travel time. A challenge remains in meaningfully engaging primary health care providers.
Publication
International Journal of Integrated Care
Volume
18
Issue
3
Date
2018
Journal Abbr
Int J Integr Care
DOI
10.5334/ijic.3953
ISSN
1568-4156
Accessed
2020-05-27T04:23:08Z
Library Catalog
PubMed Central
Extra
PMID: 30245608 PMCID: PMC6144526
Citation
Altman, L., Breen, C., Ging, J., Burrett, S., Hoffmann, T., Dickins, E., Brown, K., Zurynski, Y., & Woolfenden, S. (2018). “Dealing with the Hospital has Become too Difficult for Us to Do Alone” – Developing an Integrated Care Program for Children with Medical Complexity (CMC). International Journal of Integrated Care, 18(3). https://doi.org/10.5334/ijic.3953
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