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Patient experiences and perspectives of health service access for carpal tunnel syndrome in Aotearoa New Zealand: a normalisation process theory-informed qualitative study

Resource type
Authors/contributors
Title
Patient experiences and perspectives of health service access for carpal tunnel syndrome in Aotearoa New Zealand: a normalisation process theory-informed qualitative study
Abstract
Abstract Background Early access to care for carpal tunnel syndrome (CTS) can avoid higher rates of surgery and permanent harm yet is often delayed, particularly for populations more likely to underutilise care. Objective We sought to explore patient experiences and perspectives of health service access for CTS to inform an equity-focussed co-design of a health service for improving early care access. Methods In this Normalisation Process Theory (NPT)-informed qualitative study we conducted semistructured in-depth interviews with 19 adults with experience of CTS. Recruitment prioritised New Zealand Māori, Pasifika, low-income, and rural populations. Data were analysed using deductive then inductive thematic analysis. Results We identified five major themes: (1) the ‘Significant Impact of CTS’ of the sense-making and relational work to understand the condition, deciding when to get care, compelling clinicians to provide care, and garnering help from others; (2) ‘Waiting and Paying for Care’– the enacting, relational, and appraising work to avoid long wait times unless paying privately, particularly where quality of care was low, employment relations poor, or injury compensation processes faltered; (3) circumstances of ‘Occupation and CTS Onset’ whereby the burden of proof to relate onset of CT symptoms to occupation created excessive relational and enacting work; (4) the ‘Information Scarcity’ of good information about CTS and the high relational and appraising work associated with using online resources; (5) ‘Negotiating Telehealth Perspectives’ where telehealth was valued if it meant earlier access for all despite the challenges it held for many. Conclusion Quality, culturally and linguistically responsive information and communication from clinicians and health services will improve equitable early access to CTS care including realising the potential of telehealth modes of care. Policy changes that reduce individual burden of proof in injury compensation claims processes, enable time off work to attend health appointments, and increase public funding for surgical resources would improve early access to CTS care particularly for Māori and Pacific populations and those in small and rural workplaces. NPT is valuable for understanding where opportunities lie to reduce inequitable delays to accessing care including the impact of racism, particularly for populations more likely to underutilise care.
Publication
BMC Health Services Research
Date
2024-04-13
Volume
24
Issue
1
Pages
465
Journal Abbr
BMC Health Serv Res
Accessed
7/7/25, 12:47 AM
ISSN
1472-6963
Short Title
Patient experiences and perspectives of health service access for carpal tunnel syndrome in Aotearoa New Zealand
Language
en
Library Catalog
DOI.org (Crossref)
Notes

Study topic:
Exploration of patient experiences and barriers to accessing care for carpal tunnel syndrome (CTS) in Aotearoa New Zealand, with a focus on equity and service design.

Study type:
Qualitative study using semi-structured interviews and Normalisation Process Theory (NPT) to inform co-design of a CTS care pathway.

Key findings:

  • Participants described prolonged and uncertain access to specialist assessment and surgery, often without clear communication or coordinated care.
  • Some patients experienced frustration with inconsistent referral pathways and long wait times, which affected their trust in the health system.
  • GPs were viewed as key decision-makers but varied in their referral practices and awareness of treatment options.
  • The authors noted that initiatives like HealthPathways may help improve transparency, consistency, and efficiency of referrals by supporting GP decision making.
  • Māori participants reported experiences of discrimination and lower trust in the system, highlighting the need for culturally safe care and equity-focused system design.
  • The study called for improved referral processes, clearer communication, and reduced variation in access to timely surgical care.
Citation
Bűhler, M., Atmore, C., Perry, M., Crengle, S., Norris, P., & Baxter, G. D. (2024). Patient experiences and perspectives of health service access for carpal tunnel syndrome in Aotearoa New Zealand: a normalisation process theory-informed qualitative study. BMC Health Services Research, 24(1), 465. https://doi.org/10.1186/s12913-024-10871-x